The presentation of the Qualification process for Social Security Disability was perplexing and the criteria for Disability Determination needs further clarification. The presenter stated, the Criteria for Sickle Cell Disability Determination included:
3. Chronic Anemia affecting the Organs. Children and Adults
Laws for SSI Determination are different in each state and the process for determination can take between 1-2 years. Sickle Cell Disease Anemia not categorized as a Congenital Disease (such as Downs Syndrome) which would automatically fast-track this population as ‘disabled’ and eligible for SSI benefits. Lead experts commented on the state of Disability Determination raising that their needs to be a Once Source Resource Portal for healthcare providers to access for assisting patients and families through the process. Other comments suggestions included:
o If person with SSI have chronic pain and are not hospitalized, should they still qualify
o What are SSI benefits can they qualify for?
o If on hydroxyurea, can patients still qualify?
Ticket to Work is a free and voluntary program that can help Social Security beneficiaries go to work, get a good job that may lead to a career, and become financially independent, all while they keep their Medicare or Medicaid. Individuals who receive Social Security benefits because of a disability and are age 18 through 64 probably already qualify for the program. Click on the, Ticket to Work Program
All the best,