|Dr. Anderson, Senator Hall-Long, State Rep. Boulden & Senator Rose-Henry|
What would I like to see? The awareness that Sickle Cell is a Chronic Disease and should be given that same access to resources to improve quality of care. Although 30% of adults live with Chronic Pain every day of their lives, comprehensive-preventative-holistic ongoing care may improve outcomes long-term. What continually seems to miss the conversation and traditional media outlets is the disparaging amounts of funding and resources that go to children and the dire need bridge the gap in the transition process into adult care. Most important, will local institutions and organizations collectively share, align and pull their resources together to benefit a person with Sickle Cell Disease or other vulnerable populations across a persons Lifespan?
I want to thank the 'Dynamic Trio Team' lead by Senator Margaret Rose-Henry, Senator Bethany Hall-Long and State Representative Stephanie Boulden for chairing the Task Force. The report from the Complex Chronic Disease Task Force will be completed by May 2015 and recommendations will be made to the Governor's office.
All the best, Dr. Nina
TOVA Community Health
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