SICKLE CELL DISEASE

Sickle Cell Disease is an inherited blood disorder which affects the blood cells ability to carry oxygen through the body. Sickle Cell Disease disproportionately affects people of African-descent although people of Hispanic descent are the fastest growing ethnic group. Over 100,000 people in the U.S. suffer from Sickle Cell Disease. Under certain conditions the blood cells sickle or change shape. Vaso-occlusive crisis is the main condition that is unpredictable and the leading cause of debilitating pain and multi-organ damage.

 

Once the red blood cell sickles it can clog up in the blood vessels which deprive the tissues and vital organs of oxygen. Patients often experience excruciating pain, most commonly in the joints but it can occur anywhere in the body. Pain can be triggered by stress, changes in temperature, infection, illness and dehydration.

 

Pain crisis and infection are common problems that are treated in the hospitals by way of Emergency Rooms, Ambulatory Care Centers and Outpatient Specialty Clinics.

Check out these resource links:

Centers for Disease Control, Sickle Cell Disease
www.CDC.gov

Sickle Cell Information Center
www.scinfo.org

Sickle Cell Disease Association of America
www.sicklecelldisease.org

Get Connected-Patient Powered Registry
https://www4.gvtsecure.com/reg_scdaa/

Black Doctor, Sickle Cell Disease
www.blackdoctor.org

National Heart, Lung, and Blood Institute, Sickle Cell Anemia
www.nhlbi.nih.gov

Living Well With Sickle Cell Disease Self-Care Toolkit

How Can I Manage and Treat:

1. Sickle Cell Pain Crisis
2. Fever
3. Depression

Over 100,000 people in the U.S. live with Sickle Cell Disease Anemia but the sickle gene is prevalent in Africa, the Middle East, Mediterranean, Carribean, Indian and other geographic regions in the world where malaria is prevalent.

 

Did you know that 1 in 10 African Americans and 1 in 100 Hispanics carry the (Sickle Cell Trait) SCT which may provide protection against malaria.

Click here for more info.

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